Welcome to the Nexus of Ethics, Psychology, Morality, Philosophy and Health Care

Welcome to the nexus of ethics, psychology, morality, technology, health care, and philosophy
Showing posts with label Death. Show all posts
Showing posts with label Death. Show all posts

Wednesday, July 15, 2020

COVID-19 is more than a public health challenge: it's a moral test

Thomas Reese
religionnews.com
Originally published 10 July 20

The time is already past to admit that the coronavirus pandemic in the United States is a moral crisis, not simply a public health and economic crisis.

While a certain amount of confusion back in February at the beginning of the crisis is understandable, today it is unforgivable. Bad leadership has cost thousands of lives and millions of jobs.

A large part of the failure has been in separating the economic crisis from the public health crisis when in fact they are intimately related. Until consumers and workers feel safe, the economy cannot revive. Nor should we take the stock market as the key measure of the country’s health, rather than the lives of ordinary people.

It can be difficult to see this as a moral crisis because what is needed is not heroic action, but simple acts that everyone must do. People simply need to wear masks, keep social distance and wash their hands. Employers need to provide working conditions where that is possible.

These are practices that public health experts have taught for decades. Too many in the United States have ignored them. Warnings about masks, for example, have been ignored.

For its part, government needs to enforce these measures, expand testing on a massive scale, do contact tracing and help people isolate themselves if they test positive. Instead, government, especially at the federal level, has failed. Businesses, especially bars, restaurants and entertainment venues, have remained open or been reopened too soon.

That it is possible to do the right thing and control the virus is obvious from the examples of South Korea, Thailand, New Zealand, China, Vietnam, most of Europe, New York, Massachusetts and Connecticut.

There is also the sin of presumption of those who trust in God to protect them from the virus while doing nothing themselves. Those who left it to the Lord forgot that “God helps those who help themselves.” There is also an arrogance in seeing ourselves as different from other mortals like us. Areas where people insisted they were somehow immune to this “blue” big-city virus have now been hit with comparable or worse infection rates.

The info is here.

Monday, July 6, 2020

HR researchers discovered the real reason why stressful jobs are killing us

Arianne Cohen
fastcompany.com
Originally posted 20 May 20

Your job really might kill you: A new study directly correlates on-the-job stress with death.

Researchers at Indiana University’s Kelley School of Business followed 3,148 Wisconsinites for 20 years and found heavy workload and lack of autonomy to correlate strongly with poor mental health and the big D: death. The study is titled “This Job Is (Literally) Killing Me.”

“When job demands are greater than the control afforded by the job or an individual’s ability to deal with those demands, there is a deterioration of their mental health and, accordingly, an increased likelihood of death,” says lead author Erik Gonzalez-MulĂ©, assistant professor of organizational behavior and human resources. “We found that work stressors are more likely to cause depression and death as a result of jobs in which workers have little control.”

The reverse was also true: Jobs can fuel good health, particularly jobs that provide workers autonomy.

The info is here.

Saturday, July 4, 2020

In the face of Covid-19, the U.S. needs to change how it deals with mental illness

Jeffrey Geller
STAT NEWS
Originally posted 29 May 20

Here are two excerpts:

Frontline physicians, nurses, and other health care workers are looking death in the face every day. Shift workers in economically treacherous situations are forced to risk their health for a paycheck. Millions of Americans have lost their jobs. Still more are separated from the people they love, their daily routines have been disrupted, and they are making anxious choices every day that affect their physical and mental health.

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Second, Covid-19 has laid bare the severe doctor shortage across the United States, and that shortage includes psychiatrists. While every kind of mental health professional is necessary and indeed critical to responding to the crisis, psychiatrists bring unique expertise in serving some of the most severely compromised patients in psychiatric units and hospitals, long-term care facilities, homeless shelters, and jails and prisons. Forgiving some of the debt that students amass during medical school would incentivize more individuals to serve in these capacities, as would lifting caps on federal funding for new residency slots.

Third, we needed more psychiatric beds in hospitals before Covid-19, and need even more now as physical distancing continues — yet some hospitals have decreased the number of psychiatric beds by converting them to beds for individuals with Covid-19. Patients in psychiatric units who contract Covid-19 need to be separated from other patients. We currently do not have enough beds to treat everyone for the length of time they need. Without federal funding for psychiatric beds, we will have an increase in deaths from the mental health sequelae of Covid-19.

The info is here.

Wednesday, May 20, 2020

Ethics of controlled human infection to study COVID-19

Shah, S.K, Miller, F.G., and others
Science  07 May 2020
DOI: 10.1126/science.abc1076

Abstract

Development of an effective vaccine is the clearest path to controlling the coronavirus disease 2019 (COVID-19) pandemic. To accelerate vaccine development, some researchers are pursuing, and thousands of people have expressed interest in participating in, controlled human infection studies (CHIs) with severe acute respiratory syndrome–coronavirus 2 (SARS-CoV-2) (1, 2). In CHIs, a small number of participants are deliberately exposed to a pathogen to study infection and gather preliminary efficacy data on experimental vaccines or treatments. We have been developing a comprehensive, state-of-the-art ethical framework for CHIs that emphasizes their social value as fundamental to justifying these studies. The ethics of CHIs in general are underexplored (3, 4), and ethical examinations of SARS-CoV-2 CHIs have largely focused on whether the risks are acceptable and participants could give valid informed consent (1). The high social value of such CHIs has generally been assumed. Based on our framework, we agree on the ethical conditions for conducting SARS-CoV-2 CHIs (see the table). We differ on whether the social value of such CHIs is sufficient to justify the risks at present, given uncertainty about both in a rapidly evolving situation; yet we see none of our disagreements as insurmountable. We provide ethical guidance for research sponsors, communities, participants, and the essential independent reviewers considering SARS-CoV-2 CHIs.

The info is here.

Friday, May 8, 2020

Social-media companies must flatten the curve of misinformation

Joan Donovan
nature.com
Originally posted 14 April 20

Here is an excerpt:

After blanket coverage of the distortion of the 2016 US election, the role of algorithms in fanning the rise of the far right in the United States and United Kingdom, and of the antivax movement, tech companies have announced policies against misinformation. But they have slacked off on building the infrastructure to do commercial-content moderation and, despite the hype, artificial intelligence is not sophisticated enough to moderate social-media posts without human supervision. Tech companies acknowledge that groups, such as The Internet Research Agency and Cambridge Analytica, used their platforms for large-scale operations to influence elections within and across borders. At the same time, these companies have balked at removing misinformation, which they say is too difficult to identify reliably.

Moderating content after something goes wrong is too late. Preventing misinformation requires curating knowledge and prioritizing science, especially during a public crisis. In my experience, tech companies prefer to downplay the influence of their platforms, rather than to make sure that influence is understood. Proper curation requires these corporations to engage independent researchers, both to identify potential manipulation and to provide context for ‘authoritative content’.

Early this April, I attended a virtual meeting hosted by the World Health Organization, which had convened journalists, medical researchers, social scientists, tech companies and government representatives to discuss health misinformation. This cross-sector collaboration is a promising and necessary start. As I listened, though, I could not help but to feel teleported back to 2017, when independent researchers first began uncovering the data trails of the Russian influence operations. Back then, tech companies were dismissive. If we can take on health misinformation collaboratively now, then we will have a model for future efforts.

The info is here.

Wednesday, April 1, 2020

How Trump failed the biggest test of his life

Ed Pilkington & Tom McCarty
The Guardian
Originally posted 29 Mar 20

Here is an excerpt:

Those missing four to six weeks are likely to go down in the definitive history as a cautionary tale of the potentially devastating consequences of failed political leadership. Today, 86,012 cases have been confirmed across the US, pushing the nation to the top of the world’s coronavirus league table – above even China.

More than a quarter of those cases are in New York City, now a global center of the coronavirus pandemic, with New Orleans also raising alarm. Nationally, 1,301 people have died.

Most worryingly, the curve of cases continues to rise precipitously, with no sign of the plateau that has spared South Korea.

“The US response will be studied for generations as a textbook example of a disastrous, failed effort,” Ron Klain, who spearheaded the fight against Ebola in 2014, told a Georgetown university panel recently. “What’s happened in Washington has been a fiasco of incredible proportions.”

Jeremy Konyndyk, who led the US government’s response to international disasters at USAid from 2013 to 2017, frames the past six weeks in strikingly similar terms. He told the Guardian: “We are witnessing in the United States one of the greatest failures of basic governance and basic leadership in modern times.”

In Konyndyk’s analysis, the White House had all the information it needed by the end of January to act decisively. Instead, Trump repeatedly played down the severity of the threat, blaming China for what he called the “Chinese virus” and insisting falsely that his partial travel bans on China and Europe were all it would take to contain the crisis.

The info is here.

Saturday, January 25, 2020

Psychologist Who Waterboarded for C.I.A. to Testify at Guantánamo

Carol Rosenberg
The New York Times
Originally posted 20 Jan 20

Here is an excerpt:

Mr. Mohammed’s co-defendants were subject to violence, sleep deprivation, dietary manipulation and rectal abuse in the prison network from 2002, when the first of them, Ramzi bin al-Shibh was captured, to 2006, when all five were transferred to the prison at Guantánamo Bay. They will also be present in the courtroom.

In the black sites, the defendants were kept in solitary confinement, often nude, at times confined to a cramped box in the fetal position, hung by their wrists in painful positions and slammed head first into walls. Those techniques, approved by George W. Bush administration lawyers, were part of a desperate effort to force them to divulge Al Qaeda’s secrets — like the location of Osama bin Laden and whether there were terrorist sleeper cells deployed to carry out more attacks.

A subsequent internal study by the C.I.A. found proponents inflated the intelligence value of those interrogations.

The psychologists were called by lawyers to testify for one of the defendants, Mr. Mohammed’s nephew, Ammar al-Baluchi. All five defense teams are expected to question them about policy and for graphic details of conditions in the clandestine overseas prisons, including one in Thailand that for a time was run by Gina Haspel, now the C.I.A. director.

Mr. al-Baluchi’s lawyer, James G. Connell III, is spearheading an effort to persuade the judge to exclude from the trial the testimony of F.B.I. agents who questioned the defendants at Guantánamo in 2007. It was just months after their transfer there from years in C.I.A. prisons, and the defense lawyers argue that, although there was no overt violence during the F.B.I. interrogations, the defendants were so thoroughly broken in the black sites that they were powerless to do anything but tell the F.B.I. agents what they wanted to hear.

By law, prosecutors can use voluntary confessions only at the military commissions at Guantánamo.

The info is here.

Friday, October 11, 2019

Dying is a Moral Event. NJ Law Caught Up With Morality

T. Patrick Hill
Star-Ledge Guest Column
Originally posted September 9, 2019

New Jersey’s Medical-Aid-in-Dying legislation authorizes physicians to issue a prescription to end the lives of their patients who have been diagnosed with a terminal illness, are expected to die within six months, and have requested their physicians to help them do so. While the legislation does not require physicians to issue the prescription, it does require them to transfer a patient’s medical records to another physician who has agreed to prescribe the lethal medication.

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The Medical Aid in Dying Act goes even further, concluding that its passage serves the public’s interests, even as it endorses the “right of a qualified terminally ill patient …to obtain medication that the patient may choose to self-administer in order to bring about the patient’s humane and dignified death.”

The info is here.

Saturday, September 21, 2019

The Sacklers were drug dealers who put money over morality.

‘At nearly every turn, Purdue put profit first and created more misery.’Chris McGreal
The Guardian
Originally published September 17, 2019

If only we could feel Purdue Pharma’s pain.

The directors and owners of the company that did so much to create America’s opioid epidemic are professing distress and bewilderment at the rejection of what they claim are its good faith efforts to help the victims.

Even as Purdue announced plans late Sunday night to file for bankruptcy, its top officials were making unctuous claims that their concern was to combat an epidemic that has claimed more than 400,000 lives. Anyone who stood in the way was depriving suffering Americans of the help they need, they claimed.

Members of the Sackler family who own Purdue have offered to turn over the company to a trust which would funnel future earnings to treatment and other measures to deal with the tragedy. They would also sell Mundipharma, a British-based sister company, and hand over the payment. The Sacklers even said they would give up a part of the huge profits of OxyContin, which made the family multibillionaires.

Some of the state attorneys general and cities suing Purdue have accepted the deal as the best prospect for getting anything out of the company and said the bankruptcy filing was part of the arrangement.

Other attorneys general rejected the move, claiming it was an attempt by Purdue’s owners and executives to hang on to the bulk of the profits of drug dealing and buy their way out of individual accountability. Some of those states are also suing the Sacklers directly.

The info is here.

Friday, August 30, 2019

Cryonics: Medicine, Or The Modern Mummy?

Patrick Lin
Futuristic cryo-pod. Photocredit: GettyForbes.com
Originally posted July 8, 2019

Here is an excerpt:

Meanwhile, others argued that death is a natural and necessary part of the circle of life.  Ecologically, keeping people around long past their “natural lives” may upset an already fragile balance, potentially exacerbating overpopulation, resource consumption, waste, and so on.

This is to suggest that cryonics isn’t just a difference in degree from, say, saving heart-attack victims, but it becomes a difference in kind.  It’s not an incremental improvement, as medicine makes in slowly raising average lifespans, but it's potentially a radical disruption with major systemic effects.

Culturally, Joseph Weizenbaum— who was a MIT computer science professor and creator of ELIZA—wrote, “Our death is the last service we can provide to the world:  Would we not go out of the way, the following generations would not need to re-create human culture.  Culture would become fixed, unchangeable and die.  And with the death of culture, humanity would also perish.”

Beyond external effects, the desire for more life may express bad character.  Wanting more than one’s fair share—of life or anything else—seems egotistical and expresses ingratitude for what we already have.  If not for death, we might not appreciate our time on earth.  We appreciate many things, such as beauty and flowers, not despite their impermanence but because of it.

Wednesday, July 3, 2019

U.S. Suicide Rates Are the Highest They've Been Since World War II

Jamie Ducharme
Time.com
Originally posted June 20, 2019

U.S. suicide rates are at their highest since World War II, according to federal data—and the opioid crisis, widespread social media use and high rates of stress may be among the myriad contributing factors.

In 2017, 14 out of every 100,000 Americans died by suicide, according to a new analysis released by the Centers for Disease Control and Prevention’s National Center for Health Statistics. That’s a 33% increase since 1999, and the highest age-adjusted suicide rate recorded in the U.S. since 1942. (Rates were even higher during the Great Depression, hitting a century peak of 21.9 in 1932.)

“I don’t think there’s a one-size-fits all reason” since there’s almost never a single cause of suicide, says Jill Harkavy-Friedman, vice president of research at the American Foundation for Suicide Prevention, a nonprofit that supports suicide prevention research, education and policy. “I don’t think there’s something you can pinpoint, but I do think a period of increased stress and a lack of a sense of security may be contributing.”

It’s even more difficult to assign causes to the uptick, Harkavy-Friedman says, because it’s happening across diverse demographic groups. Men have historically died by suicide more frequently than women, and that’s still true: As of 2017, the male suicide rate was more than three times higher than the female rate. But female suicide rates are rising more quickly—by 53% since 1999, compared to 26% for men—and the gap is narrowing. For both genders, suicide rates are highest among American Indians and Alaska natives, compared to other ethnicities, and when the data are broken down by age group, the most suicide deaths are reported among people ages 45 to 64—but nearly every ethnic and age group saw an increase of some size from 1999 to 2017.

The info is here.

Sunday, May 5, 2019

When a Colleague Dies, CEOs Change How They Lead

Guoli Chen
www.barrons.com
Originally posted April 8, 2019

Here is an excerpt:

A version of my research, “That Could Have Been Me: Director Deaths, CEO Mortality Salience and Corporate Prosocial Behavior” (co-authored with Craig Crossland and Sterling Huang and forthcoming in Management Science) notes the significant impact a director’s death can have on resource allocation within a firm and on CEO’s activities, both outside and inside the organization.

For example, we saw that CEOs who’d experienced the death of a director on their boards reduced the number of outside directorships they held in the publicly listed firms. At the same time, they increased their number of directorships in non-profit organizations. It seems that thoughts of mortality had inspired a desire to make a lasting, positive contribution to society, or to jettison some priorities in favor of more pro-social ones.

We also saw differences in how CEOs led their firms. In our study, which looked at statistics taken from public firms where a director had died in the years between 1990 and 2013 and compared them with similar firms where no director had died, we saw that CEOs who’d experienced the death of a close colleague spend less efforts on the firms’ immediate growth or financial return activities. We found that there is an increase of costs-of-goods-sold, and companies they lead become less aggressive in expanding their assets and firm size, after the director death events. It could be due to the “quiet life” or “withdrawal behavior” hypotheses which suggest that CEOs become less engaged with the corporate activities after they realize the finite of life span. They may shift their time and focus from corporate to family or community activities.

Meanwhile we also observed that firms lead by these CEOs after the director death experienced an increase their corporate social responsibility (CSR) activities. CEOs with a heightened awareness of deaths will influence their firms resource allocation towards activities that provide benefits to broader stakeholders, such as employee health plans, more environmentally-friendly manufacturing processes, and charitable contributions.

The info is here.

Thursday, May 2, 2019

Part-revived pig brains raise slew of ethical quandaries

Nita A. Farahany, Henry T. Greely & Charles M. Giattino
Nature
Originally published April 17, 2019

Scientists have restored and preserved some cellular activities and structures in the brains of pigs that had been decapitated for food production four hours before. The researchers saw circulation in major arteries and small blood vessels, metabolism and responsiveness to drugs at the cellular level and even spontaneous synaptic activity in neurons, among other things. The team formulated a unique solution and circulated it through the isolated brains using a network of pumps and filters called BrainEx. The solution was cell-free, did not coagulate and contained a haemoglobin-based oxygen carrier and a wide range of pharmacological agents.

The remarkable study, published in this week’s Nature, offers the promise of an animal or even human whole-brain model in which many cellular functions are intact. At present, cells from animal and human brains can be sustained in culture for weeks, but only so much can be gleaned from isolated cells. Tissue slices can provide snapshots of local structural organization, yet they are woefully inadequate for questions about function and global connectivity, because much of the 3D structure is lost during tissue preparation.

The work also raises a host of ethical issues. There was no evidence of any global electrical activity — the kind of higher-order brain functioning associated with consciousness. Nor was there any sign of the capacity to perceive the environment and experience sensations. Even so, because of the possibilities it opens up, the BrainEx study highlights potential limitations in the current regulations for animals used in research.

The info is here.

Monday, April 29, 2019

Nova Scotia to become 1st in North America with presumed consent for organ donation

Michael Gorman
www.cbc.com
Originally posted April 2, 2019

Here is an excerpt:

Premier Stephen McNeil said the bill fills a need within the province, noting Nova Scotia has some of the highest per capita rates of willing donors in the country.

"That doesn't always translate into the actual act of giving," he said.

"We know that there are many ways that we can continue to improve the system that we have."

McNeil pledged to put the necessary services in place to allow the province's donor program to live up to the promise of the legislation.

"We know that in many parts of our province — including the one I live in, which is a rural part of Nova Scotia — we have work to do," he said.

"I will make sure that the work that is required to build the system and supports around this will happen."

The bill will not be proclaimed right away.

Health Minister Randy Delorey said government officials would spend 12-18 months educating the public about the change and working on getting health-care workers the support they need to enhance the program.

Even with the change, Delorey said, people should continue making their wishes known to loved ones, so there can be no question about intentions.

The info is here.

Tuesday, April 9, 2019

N.J. approves bill giving terminally ill people the right to end their lives

Susan Livio
www.nj.com
Originally posted March 25, 2019

New Jersey is poised to become the eighth state to allow doctors to write a lethal prescription for terminally ill patients who want to end their lives.

The state Assembly voted 41-33 with four abstentions Monday to pass the “Medical Aid in Dying for the Terminally Ill Act." Minutes later, the state Senate approved the bill 21-16.

Gov. Phil Murphy later issued a statement saying he would sign the measure into law.

“Allowing terminally ill and dying residents the dignity to make end-of-life decisions according to their own consciences is the right thing to do," the Democratic governor said. "I look forward to signing this legislation into law.”

The measure (A1504) would take effect four months after it is signed.

Susan Boyce, 55 of Rumson, smiled and wept after the final vote.

“I’ve been working on this quite a while," said Boyce, who is diagnosed with a terminal auto immune disease, Alpha-1 antitrypsin deficiency, and needs an oxygen tank to breathe.

The info is here.

Wednesday, April 3, 2019

Artificial Morality

Robert Koehler
www.citywathcla.com
Originally posted March 21, 2019

Here is an excerpt:

What I see here is moral awakening scrambling for sociopolitical traction: Employees are standing for something larger than sheer personal interests, in the process pushing the Big Tech brass to think beyond their need for an endless flow of capital, consequences be damned.

This is happening across the country. A movement is percolating: Tech won’t build it!

“Across the technology industry,” the New York Times reported in October, “rank-and-file employees are demanding greater insight into how their companies are deploying the technology that they built. At Google, Amazon, Microsoft and Salesforce, as well as at tech start-ups, engineers and technologists are increasingly asking whether the products they are working on are being used for surveillance in places like China or for military projects in the United States or elsewhere.

“That’s a change from the past, when Silicon Valley workers typically developed products with little questioning about the social costs.”

What if moral thinking — not in books and philosophical tracts, but in the real world, both corporate and political — were as large and complex as technical thinking? It could no longer hide behind the clichĂ© of the just war (and surely the next one we’re preparing for will be just), but would have to evaluate war itself — all wars, including the ones of the past 70 years or so, in the fullness of their costs and consequences — as well as look ahead to the kind of future we could create, depending on what decisions we make today.

Complex moral thinking doesn’t ignore the need to survive, financially and otherwise, in the present moment, but it stays calm in the face of that need and sees survival as a collective, not a competitive, enterprise.

The info is here.

Friday, January 25, 2019

Study Links Drug Maker Gifts for Doctors to More Overdose Deaths

Abby Goodnough
The New York Times
Originally posted January 18, 2019

A new study offers some of the strongest evidence yet of the connection between the marketing of opioids to doctors and the nation’s addiction epidemic.

It found that counties where opioid manufacturers offered a large number of gifts and payments to doctors had more overdose deaths involving the drugs than counties where direct-to-physician marketing was less aggressive.

The study, published Friday in JAMA Network Open, said the industry spent about $40 million promoting opioid medications to nearly 68,000 doctors from 2013 through 2015, including by paying for meals, trips and consulting fees. And it found that for every three additional payments that companies made to doctors per 100,000 people in a county, overdose deaths involving prescription opioids there a year later were 18 percent higher.

Even as the opioid epidemic was killing more and more Americans, such marketing practices remained widespread. From 2013 through 2015, roughly 1 in 12 doctors received opioid-related marketing, according to the study, including 1 in 5 family practice doctors.

The info is here.

Thursday, December 6, 2018

Survey Finds Widespread 'Moral Distress' Among Veterinarians

Carey Goldberg
NPR.org
Originally posted October 17, 2018

In some ways, it can be harder to be a doctor of animals than a doctor of humans.

"We are in the really unenviable, and really difficult, position of caring for patients maybe for their entire lives, developing our own relationships with those animals — and then being asked to kill them," says Dr. Lisa Moses, a veterinarian at the Massachusetts Society for the Prevention of Cruelty to Animals-Angell Animal Medical Center and a bioethicist at Harvard Medical School.

She's the lead author of a study published Monday in the Journal of Veterinary Internal Medicine about "moral distress" among veterinarians. The survey of more than 800 vets found that most feel ethical qualms — at least sometimes — about what pet owners ask them to do. And that takes a toll on their mental health.

Dr. Virginia Sinnott-Stutzman is all too familiar with the results. As a senior staff veterinarian in emergency and critical care at Angell, she sees a lot of very sick animals — and quite a few decisions by owners that trouble her.

Sometimes, owners elect to have their pets put to sleep because they can't or won't pay for treatment, she says. Or the opposite, "where we know in our heart of hearts that there is no hope to save the animal, or that the animal is suffering and the owners have a set of beliefs that make them want to keep going."

The info is here.

Tuesday, November 27, 2018

A fate worse than death

Cathy Rentzenbrink
Prospect Magazine
Originally posted March 18, 2018

Here is an excerpt:

We have lost our way with death. Improvements in medicine have led us to believe that a long and fulfilling life is our birthright. Death is no longer seen as the natural consequence of life but as an inconvenient and unjust betrayal. We are in an age of denial.

Why does this matter? Why not allow ourselves this pleasant and surely harmless delusion? It matters because we are in a peculiar and precise period of history where our technological advances enable us to keep people alive when we probably shouldn’t. Life or death is no longer a black and white situation. There are many and various shades of grey. We behave as though death is the worst outcome, but it isn’t.

Many years after the accident, when I wrote a book about it called The Last Act of Love, I catalogued what happened to me as I witnessed the destruction of my brother. I detailed the drinking and the depression. The hardest thing was tracking our journey from hope to despair. I still find it hard to be precise about exactly when and how I realised that Matty would be better off dead. I know I moved from being convinced that if I tried hard enough I could bring Matty back to life, to thinking I should learn to love him as he was. Eventually I asked myself the right question: would Matty himself want to be alive like this? Of course, the answer was no.

The info is here.

Friday, November 2, 2018

Health care, disease care, or killing care?

Hugo Caicedo
Harvard Blogs
Originally published October 1, 2018

Traditional medical practice is rooted in advanced knowledge of diseases, their most appropriate treatment, and adequate proficiency in its applied practice. Notably, today, medical treatment does not typically occur until disease symptoms have manifested. While we now have ways to develop therapies that can halt the progression of some symptomatic diseases, symptomatic solutions are not meant to serve as a cure of disease but palliative treatment of late-stage chronic diseases.

The reactive approach in most medical interventions is magnified in that medicine is prone to errors. In November of 1999, the U.S. National Academy of Science, an organization representing the most highly regarded scientists and physician researchers in the U.S., published the report To Err is Human.

The manuscript noted that medical error was a leading cause of patient deaths killing up to 98,000 people in the U.S. every year. One hypothesis that came up was that patient data was being poorly collected, aggregated, and shared among different hospitals and even within the same health system. Health policies such the Health Information Technology for Economic and Clinical Health Act (HITECH) in 2009 and the Affordable Care Act (ACA) in 2010, primarily focused on optimizing clinical and operational effectiveness through the use of health information technology and expansion of government insurance programs, respectively. However, they did not effectively address the issue of medical errors such as poor judgment, mistaken diagnoses, inadequately coordinated care, and incompetent skill that can directly result in patient harm and death.

The blog post is here.