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Welcome to the nexus of ethics, psychology, morality, technology, health care, and philosophy
Showing posts with label Privatization. Show all posts
Showing posts with label Privatization. Show all posts

Sunday, October 2, 2016

Why you should worry about the privatization of genetic data

Kayte Spector-Bagdady
The Conversation
Originally posted September 8, 2016

Here is an excerpt:

But genetic data banks amassed by private companies don’t necessarily have to follow the same regulations regarding access to their data that federally funded researchers do. And a recent proposal to change consent regulations for human research may make it cheaper for private companies to collect and use this data than public ones.

As bioethicists (myself included) have warned, we need to pay attention to concerns about how these private genetic data banks are used and accessed before we enable a system where the future of public genetic research lies in private hands.

The article is here.

Tuesday, April 1, 2014

Billionaires With Big Ideas Are Privatizing American Science

By William J. Broad
The New York Times
Originally published March 15, 2014

Here is an excerpt:

Absent from his narrative, though, was the back story, one that underscores a profound change taking place in the way science is paid for and practiced in America. In fact, the government initiative grew out of richly financed private research: A decade before, Paul G. Allen, a co-founder of Microsoft, had set up a brain science institute in Seattle, to which he donated $500 million, and Fred Kavli, a technology and real estate billionaire, had then established brain institutes at Yale, Columbia and the University of California. Scientists from those philanthropies, in turn, had helped devise the Obama administration’s plan.

American science, long a source of national power and pride, is increasingly becoming a private enterprise.

The entire story is here.