Written by Nicolle Strand
September 24, 2015
Here is an excerpt:
Despite these challenges, the Commission emphasized the importance of obtaining fully informed consent from all participants. Being asked to provide informed consent about the use of their data, the Commission argued, conveys respect to participants, separate and apart from their interest in preventing the unauthorized use or disclosure of their data. In other words—there is value to informed consent in and of itself, as it respects autonomy and personhood.
The entire blog post is here.
Note: The blog posts are short. These are excellent resources from the Presidential Commission for the Study of Bioethical Issues.