By Laura Landro
The Wall Street Journal
Originally published June 26, 2016
Here is an excerpt:
How different people handle uncertainty is also a concern. The surveys include questions such as whether unforeseen events are highly upsetting and whether participants can function well in a climate of uncertainty.
The survey results aren’t final yet. But Dr. Leonard says one concern people have is “learning about something they just don’t want to know about.”
Among the ethical issues she is exploring is “whether someone should be given the choice not to know about a disease risk for which there are preventive or monitoring strategies that would reduce the severity of the disease and therefore the cost of care.”
The article is here.