Welcome to the Nexus of Ethics, Psychology, Morality, Philosophy and Health Care

Welcome to the nexus of ethics, psychology, morality, technology, health care, and philosophy

Saturday, July 13, 2013

Avoiding the digital ‘flock’

By Chuck Leddy,
Harvard Gazette
Originally published June 27, 2013

Here are two excerpts:

Digital tools actually encourage flocking (called “homophily” by social scientists), Zuckerman said. For instance, “Facebook is very good at connecting us with people we’re already connected with.”  Zuckerman also mentioned Facebook’s search function, which personalizes results based on your “likes” and the preferences of your friends. “It’s kind of creepy,” said Zuckerman. “I’m not sure I want my friends pre-filtering for me.”

Whether in the real or virtual worlds, said Zuckerman, “We have a talent for finding people with the same socioeconomic background or racial background. But this tendency to flock may be keeping us from finding the information we need,” and the tools we’ve built for the Internet only enhance our flocking bias.

“My fear is that our tools are not promoting diversity,” said Zuckerman, whose appearance served as a launch party for his book “Rewire.” Personalization tools “want to give you precisely what you want, to make you comfortable” and ready to buy things, he said. “The danger is that we may be driven into small circles of the same content,” a sort of digital self-segregation into echo chambers where none of our assumptions get scrutinized.

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How then should people manage their tendency to seek out like-minded folk? First, they need to track their behavior for the presence of flocking bias. Zuckerman showed a graph exposing his own Twitter “follow bias”: Only 27 percent of the people he follows are women. “This is an embarrassing slide,” Zuckerman said, “but now when I follow someone, I think about” the follow bias. He said people need to be self-reflective about their media-consumption preferences, and push back against them. “I know that left on my own, I’d spend all my time reading cute cat macros on Reddit” or constantly consuming news about his beloved Green Bay Packers.

The entire story is here.

Breaking the Seal on Drug Research

By KATIE THOMAS
The New York Times
Published: June 29, 2013

Here are som excerpts:

For years, researchers have talked about the problem of publication bias, or selectively publishing results of trials. Concern about such bias gathered force in the 1990s and early 2000s, when researchers documented how, time and again, positive results were published while negative ones were not. Taken together, studies have shown that results of only about half of clinical trials make their way into medical journals.

Problems with data about high-profile drugs have led to scandals over the past decade, like one involving contentions that the number of heart attacks was underreported in research about the painkiller Vioxx. Another involved accusations of misleading data about links between the antidepressant Paxil and the risk of suicide among teenagers.

To those who have followed this issue for years, the moves toward openness are unfolding with surprising speed.

“This problem has been very well documented for at least three decades now in medicine, with no substantive fix,” said Dr. Ben Goldacre, a British author and an ally of Dr. Doshi. “Things have changed almost unimaginably fast over the past six months.”

Much of that change is happening because of what Dr. Goldacre calls an “accident of history.” In 2009, Dr. Doshi and his colleagues set out to answer a simple question about the anti-flu drug Tamiflu: Does it work? Resolving that question has been far harder than they ever envisioned, and, four years later, there is still no definitive answer. But the quest to determine Tamiflu’s efficacy transformed Dr. Doshi and others into activists for transparency — and turned the tables on drug makers. Until recently, the idea that companies should routinely hand over detailed data about their clinical trials might have sounded far-fetched. Now, the onus is on the industry to explain why it shouldn’t.

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Earlier this month, Dr. Doshi opened what he hopes will be a new chapter in his quest for greater understanding of clinical trials. He and several other researchers published what amounted to an ultimatum to drug companies: publish your data, or we’ll do it for you.

The entire story is here.

Friday, July 12, 2013

ATA Responds to CMS Proposal for Expanded Telemedicine Coverage

Press Release
The American Telemedicine Association
Originally published July 10, 2013

The American Telemedicine Association voices its cautious support for new proposals by the Centers for Medicare and Medicaid Services (CMS) that would expand Medicare’s telehealth footprint.  CMS proposes to increase the number of beneficiaries eligible for telemedicine by modifying their urban/rural definitions and proposes several new reimbursable telemedicine services.

“Overall, the proposed rules are good news for Medicare patients and forward-thinking healthcare providers. We applaud CMS for taking steps to help these patients benefit from proven telemedicine technologies,” said Jonathan Linkous, Chief Executive Officer of the American Telemedicine Association. "But many potential beneficiaries are still left behind.  For example, we hope that either CMS or Congress take additional steps to restore telehealth benefits to the one million beneficiaries in 104 counties that lost coverage last year due to reclassification to metropolitan areas.”

The entire story is here.

Thanks to Alex Siegel for this information

Diagnosis: Insufficient Outrage

By H. GILBERT WELCH
The New York Times - Op Ed
Published: July 4, 2013

RECENT revelations should lead those of us involved in America’s health care system to ask a hard question about our business: At what point does it become a crime?

I’m not talking about a violation of federal or state statutes, like Medicare or Medicaid fraud, although crime in that sense definitely exists. I’m talking instead about the violation of an ethical standard, of the very “calling” of medicine.

Medical care is intended to help people, not enrich providers. But the way prices are rising, it’s beginning to look less like help than like highway robbery. And the providers — hospitals, doctors, universities, pharmaceutical companies and device manufactures — are the ones benefiting.

A number of publications — including this one — have recently published big reports on the exorbitant cost of American health care. In March, Time magazine ran a cover story exposing outrageous hospital prices, from $108 for a tube of bacitracin — the ointment my mother put on the scrapes I got as a kid and that costs $5 at CVS — to $21,000 for a three-hour emergency room evaluation for chest pain caused by indigestion.

The entire story is here.

Kill Whitey. It’s the Right Thing to Do.

by David Dobbs
Neuron Culture
September 15, 2010

Here is an excerpt:

Researchers generally use these (trolley) scenarios to see whether people hold a) an absolutist or so-called “deontological” moral code or b) a utilitarian or “consequentialist” moral code. In an absolutist code, an act’s morality virtually never depends on context or secondary consequences. A utilitarian code allows that an act’s morality can depend on context and secondary consequences, such as whether taking one life can save two or three or a thousand.

In most studies, people start out insisting they have absolute codes. But when researchers tweak the settings, many people decide morality is relative after all: Propose, for instance, that the fat man is known to be dying, or was contemplating jumping off the bridge anyway — and the passengers are all children — and for some people, that makes it different. Or the guy is a murderer and the passengers nuns. In other scenarios the man might be slipping, and will fall and die if you don’t grab him: Do you save him … even if it means all those kids will die? By tweaking these settings, researchers can squeeze an absolutist pretty hard, but they usually find a mix of absolutists and consequentialists.

As a grad student, Pizarro liked trolleyology. Yet it struck him that these studies, in their targeting of an absolutist versus consequentialist spectrum, seemed to assume that most people would hold firm to their particular spots on that spectrum — that individuals generally held a roughly consistent moral compass. The compass needle might wobble, but it would generally point in the same direction.

Pizarro wasn’t so sure. He suspected we might be more fickle. That perhaps we act first and scramble for morality afterward, or something along those lines, and that we choose our rule set according to how well it fits our desires.

The entire blog post is here.

Thursday, July 11, 2013

WellPoint to pay $1.7 million HIPAA penalty

By Rachel Landen and Joseph Conn
ModernHealthcare.com
Published July 11, 2013

WellPoint, which serves nearly 36 million people through its affiliated health plans, has agreed to pay a $1.7 million penalty to HHS for potential violations of the privacy and security rules under the Health Insurance Portability and Accountability Act of 1996.

Between Oct. 23, 2009, and March 7, 2010, access to personal data for 612,402 people—their names, dates of birth, addresses, Social Security numbers, telephone numbers and health information—was made available to unauthorized users as the result of online security weaknesses, HHS said Thursday.

During an investigation of WellPoint's information systems, HHS' Office for Civil Rights found that the Indianapolis-based insurer had not enacted appropriate administrative, technical and physical safeguards for data as required by HIPAA.

The entire story is here.

Medicare fraud outrunning enforcement efforts

By Fred Shulte
The Center for Public Integrity
Originally published on July 1, 2013

Citing massive budget and staff cuts, federal officials are set to scale back or drop a host of investigations into Medicare and Medicaid fraud and abuse — even though cracking down on government waste and cutting health care costs have been top priorities for the Obama administration.

The Department of Health and Human Services Office of Inspector General is set to lose a total of 400 staffers that are deployed nationwide as a primary defense against health care fraud and abuse. Though agency officials have yet to decide which investigations will be shelved as staff dwindles, the existing staff is already stretched so thin that the agency has failed to act on 1,200 complaints over the past year alleging wrongdoing — and expects that number to rise. The OIG began shedding staff at the beginning of the year.

The budget crunch surfaced during questioning at a June 24 hearing of the Senate Committee on Homeland Security and Governmental Affairs. The hearing was called to examine prescription drug abuse in Medicare.

Gary Cantrell, Deputy Inspector General for the OIG Office of Investigations, said at the hearing that his unit “is shrinking” even as the federal Medicare and Medicaid programs grow in size and complexity. “We’re set to lose roughly 400 bodies out of a total of 1,800 at our peak in 2012. That’s really limiting our ability to expand our oversight in some of these areas,” he said.

Stuart Wright, Deputy Inspector General for the OIG Office of Evaluations and Inspections, added that 200 of those staffers will have departed by the end of this year and 200 more are out the door by the end of 2015.

The entire story is here.

Privacy and the Threat to the Self

By MICHAEL P. LYNCH
The New York Times - Opinionator
Originally published June 22, 2013

In the wake of continuing revelations of government spying programs and the recent Supreme Court ruling on DNA collection – both of which push the generally accepted boundaries against state intrusion on the person — the issue of privacy is foremost on the public mind. The frequent mantra, heard from both media commentators and government officials, is that we face a “trade-off” between safety and convenience on one hand and privacy on the other. We just need, we are told, to find the right balance.

This way of framing the issue makes sense if you understand privacy solely as a political or legal concept. And its political importance is certainly part of what makes privacy so important: what is private is what is yours alone to control, without interference from others or the state. But the concept of privacy also matters for another, deeper reason. It is intimately connected to what it is to be an autonomous person.

What makes your thoughts your thoughts? One answer is that you have what philosophers sometimes call “privileged access” to them. This means at least two things. First, you access them in a way I can’t. Even if I could walk a mile in your shoes, I can’t know what you feel in the same way you can: you see it from the inside so to speak. Second, you can, at least sometimes, control what I know about your thoughts. You can hide your true feelings from me, or let me have the key to your heart.

The entire story is here.

Wednesday, July 10, 2013

How Reading Makes Us More Human

A debate has erupted over whether reading fiction makes human beings more moral. But what if its real value consists in something even more fundamental?

By Karen Swallow Prior
The Atlantic
Originally posted on June 21, 2013

A battle over books has erupted recently on the pages of The New York Times and Time. The opening salvo was Gregory Currie's essay, "Does Great Literature Make Us Better?" which asserts that the widely held belief that reading makes us more moral has little support. In response, Annie Murphy Paul weighed in with "Reading Literature Makes Us Smarter and Nicer." Her argument is that "deep reading," the kind of reading great literature requires, is a distinctive cognitive activity that contributes to our ability to empathize with others; it therefore can, in fact, makes us "smarter and nicer," among other things. Yet these essays aren't so much coming to different conclusions as considering different questions.

To advance her thesis, Paul cites studies by Raymond Mar, a psychologist at York University in Canada, and Keith Oatley, a professor emeritus of cognitive psychology at the University of Toronto. Taken together, their findings suggest that those "who often read fiction appear to be better able to understand other people, empathize with them and view the world from their perspective." It's the kind of thing writer Joyce Carol Oates is talking about when she says, "Reading is the sole means by which we slip, involuntarily, often helplessly, into another's skin, another's voice, another's soul."

Oatley and Mar's conclusions are supported, Paul argues, by recent studies in neuroscience, psychology, and cognitive science. This research shows that "deep reading -- slow, immersive, rich in sensory detail and emotional and moral complexity -- is a distinctive experience," a kind of reading that differs in kind and quality from "the mere decoding of words" that constitutes a good deal of what passes for reading today, particularly for too many of our students in too many of our schools (as I have previously written about here).

Paul concludes her essay with a reference to the literary critic Frank Kermode, who famously distinguishes between "carnal reading" -- characterized by the hurried, utilitarian information processing that constitutes the bulk of our daily reading diet -- and "spiritual reading," reading done with focused attention for pleasure, reflection, analysis, and growth. It is in this distinction that we find the real difference between the warring factions in what might be a chicken-or-egg scenario: Does great literature make people better, or are good people drawn to reading great literature?

The entire article is here.