Academics Raise More Than $315,000 for Data Bloggers Sued by Harvard Business School Professor Gino

Neil H. Shah & Claire Yuan

The Crimson

Originally published 1 Sept 23

A group of academics has raised more than $315,000 through a crowdfunding campaign to support the legal expenses of the professors behind data investigation blog Data Colada — who are being sued for defamation by Harvard Business School professor Francesca Gino.

Supporters of the three professors — Uri Simonsohn, Leif D. Nelson, and Joseph P. Simmons — launched the GoFundMe campaign to raise funds for their legal fees after they were named in a $25 million defamation lawsuit filed by Gino last month.

In a series of four blog posts in June, Data Colada gave a detailed account of alleged research misconduct by Gino across four academic papers. Two of the papers were retracted following the allegations by Data Colada, while another had previously been retracted in September 2021 and a fourth is set to be retracted in September 2023.

Organizers wrote on GoFundMe that the fundraiser “hit 2,000 donors and $250K in less than 2 days” and that Simonsohn, Nelson, and Simmons “are deeply moved and grateful for this incredible show of support.”

Simine Vazire, one of the fundraiser’s organizers, said she was “pleasantly surprised” by the reaction throughout academia in support of Data Colada.

“It’s been really nice to see the consensus among the academic community, which is strikingly different than what I see on LinkedIn and the non-academic community,” she said.

Elisabeth M. Bik — a data manipulation expert who also helped organize the fundraiser — credited the outpouring of financial support to solidarity and concern among scientists.

“People are very concerned about this lawsuit and about the potential silencing effect this could have on people who criticize other people’s papers,” Bik said. “I think a lot of people want to support Data Colada for their legal defenses.”

Andrew T. Miltenberg — one of Gino’s attorneys — wrote in an emailed statement that the lawsuit is “not an indictment on Data Colada’s mission.”

The info is here.

Go Fund Yourself

Stephen Marche

Mother Jones

Originally published January/February 2018

Here is an excerpt:

Health care in America is the wedge of inequality: It’s the luxury everyone has to have and millions can’t afford. Sites like YouCaring have stepped in to fill the gap. The total amount in donations generated by crowdfunding sites has increased eleven­fold since the appearance of Obamacare. In 2011, sites like GoFundMe and YouCaring were generating a total of $837 million. Three years later, that number had climbed to $9.5 billion. Under the Trump administration, YouCaring expects donations to jump even higher, and the company has already seen an estimated 25 percent spike since the election, which company representatives believe is partly a response to the administration’s threats to Obamacare.

Crowdfunding companies say they’re using technology to help people helping people, the miracle of interconnectedness leading to globalized compassion. But an emerging consensus is starting to suggest a darker, more fraught reality—sites like YouCaring and GoFundMe may in fact be fueling the inequities of the American health care system, not fighting them. And they are potentially exacerbating racial, economic, and educational divides. “Crowdfunding websites have helped a lot of people,” medical researcher Jeremy Snyder wrote in a 2016 article for the Hastings Center Report, a journal focused on medical ethics. But, echoing other scholars, he warned that they’re “ultimately not a solution to injustices in the health system. Indeed, they may themselves be a cause of injustices.” Crowdfunding is yet another example of tech’s best intentions generating unseen and unfortunate outcomes.

The article is here.

The Moral Failure of Crowdfunding Health Care

Jonathan Hiskes
medium.com
Originally posted April 3, 2017

Here is an excerpt:

The most dangerous consequence of the rise of medical crowdfunding, they argue, is the way it trains us to see health care as a personal good to be earned, rather than a universal human right. Other forums, like a public town hall, could provide room for debate on whether we want this state of affairs in our country. The format of GoFundMe steers users toward “hyper-individualized accounts of suffering.”

“Relying on these sites changes how we perceive the problem,” said Kenworthy. “It masks a more open conversation we could be having about the inequities of our health system. There’s no space for a structural critique in your personal appeal.”

In this way, crowdfunding functions as both a symptom and a cause of a health care system designed for austerity.

The article is here.

Crowdfunding FOR MEDICAL CARE: Ethical Issues in an Emerging Health Care Funding Practice

Jeremy Snyder
The Hastings Center Report
November 22, 2016

Abstract

Crowdfunding websites allow users to post a public appeal for funding for a range of activities, including adoption, travel, research, participation in sports, and many others. One common form of crowdfunding is for expenses related to medical care. Medical crowdfunding appeals serve as a means of addressing gaps in medical and employment insurance, both in countries without universal health insurance, like the United States, and countries with universal coverage limited to essential medical needs, like Canada. For example, as of 2012, the website Gofundme had been used to raise a total of 8.8 million dollars (U.S.) for seventy-six hundred campaigns, the majority of which were health related. This money can make an important difference in the lives of crowdfunding users, as the costs of unexpected or uninsured medical needs can be staggering. In this article, I offer an overview of the benefits of medical crowdfunding websites and the ethical concerns they raise. I argue that medical crowdfunding is a symptom and cause of, rather than a solution to, health system injustices and that policy-makers should work to address the injustices motivating the use of crowdfunding sites for essential medical services. Despite the sites’ ethical problems, individual users and donors need not refrain from using them, but they bear a political responsibility to address the inequities encouraged by these sites. I conclude by suggesting some responses to these concerns and future directions for research.

The article is here.